Disclaimer: The resources are listed as I have found them helpful to my own learning and others may also find helpful. I cannot vouch for all content included within each listed resource. Our understanding continues to expand with further scientific research and I will update this list accordingly. If you have a concern with an item listed, please let me know. These resources should not be construed as medical advice; it is recommended to consult your own licensed healthcare provider before making any changes. ~Tasha
A condensed/ slightly different resource list can be found here.
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About the Autonomic nervous system
Vagus Nerve as Modulator of the Brain-Gut Axis in Psychiatric and Inflammatory Disorders
The vagus nerve and the inflammatory reflex—linking immunity and metabolism
Can vagus nerve stimulation halt or ameliorate rheumatoid arthritis and lupus?
Application of Noninvasive Vagal Nerve Stimulation to Stress-Related Psychiatric Disorders
Breath of Life: The Respiratory Vagal Stimulation Model of Contemplative Activity
Iyengar Yoga Increases Cardiac Parasympathetic Nervous Modulation Among Healthy Yoga Practitioners
Music structure determines heart rate variability of singers
Autonomic nervous function during whole-body cold exposure before and after cold acclimation
Accessing the Healing Power of the Vagus Nerve (book) by Stanley Rosenberg
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Brief explanation/ demonstration of belly breathing
Review Article: Heart rate variability and slow-paced breathing: when coherence meets resonance, Sevoz-Couche & Laborde, 2022 https://doi.org/10.1016/j.neubiorev.2022.104576
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Types of EDS:
Ehlers-Danlos Society EDS Types webpage
The Ehlers-Danlos Syndromes, Rare Types (2017) doi: 10.1002/ajmg.c.31550
Ehlers-Danlos syndrome, classical type (2017) doi: 10.1002/ajmg.c.31548
Books
Living Life to the Fullest w/EDS
Transforming Ehlers-Danlos Syndrome
The Bendy Twisty Zebra (children’s book)
Videos
The Ehlers-Danlos Society You tube
Podcasts
Websites
Journal articles on EDS & Neurodivergence
EDS Awareness/ Chronic pain partners
The Zebra Club: Movement therapy for EDS & hypermobility
Other Resources
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Stickler Syndrome: A Review of Clinical Manifestations and the Genetic Evaluation (2020)
Stickler Syndrome (review) 2021
The Marfan Foundation Info on vascular related connective tissue disorders including Marfan, Stickler, Loeys-Dietz, and vascular EDS
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Journal Articles
Links to articles looking at Neurodivergence & Hypermobility co-occurrence
Books
Loud Hands: Autistic People, Speaking
ADHD 2.0: New Science and Essential Strategies for Thriving with Distraction
Driven to Distraction: Recognizing and Coping with ADD
Order from Chaos: The Everyday Grind of Staying Organized with Adult ADHD
Websites
Neuroqueer Essays by Nick Walker
What is Neurodivergence by Dani Alexis
Autistics Unmasked -Am I Autistic e-book
Podcasts
Videos
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Podcasts:
Bendy Bodies -Ep 54 Managing Mast Cell Pain with Dr Bluestein
Bendy Bodies -Ep 35 Re-educating Mast Cells with Dr Anne Maitland
Bendy Bodies -Ep 34 Highlighting GI Disorders (r/t MCAS) Dr Weinstock
Hypermobility Happy Hour -Ep 11 MCAS with Dr Lawrence Afrin
Hypermobility Happy Hour -Ep 12 Mast Cells and Hormones Dr Tania Dempsey
Hypermobility Happy Hour -Ep 19 Menses, Mast Cells, and Migraines Dr Rosenthal
Podcast for Healing Neurology -Ep 40 with Anne Maitland
The POTScast -Ep 115 Mast Cell Matters with Tania Dempsey
The POTScast -Ep 40 Misbehaving Mast Cells with Dr Afrin
The POTScast -Ep 107 on compounding medication
The POTScast -Ep 21 Mast Cells causing Mayhem w Dr Beth O’Hara
The POTScast -Ep 135: Gastrointestinal Manifestations of MCAS with Dr. Leonard Weinstock
The POTScast -Ep 129: The Importance of the MCAS Consensus Statement 2 with Dr. Lawrence Afrin
Videos:
Understanding Mast Cell Activation in EDS & HSD with Dr Anne Maitland
Neuropsychiatric Manifestations of Mast Cell Disease with Anne Maitland
MCAS: The Functional Medicine Approach
Autoimmunity & Mast Cell Activation in Dysautonomia Dr Brent Goodman
Mast Cell Activation & Dysautonomia Dr Afrin
Books:
Disjointed: Navigating the Diagnosis and Management of hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders > chapter 11 by Dr Maitland
The Trifecta Passport by Amber Walker, DPT
Questionnaire:
Mast Cell Mediator Release Syndrome Questionnaire (commonly used by clinicians to assess for possible mast cell disorder)
Website:
Medline plus (reputable website to read about conditions & medications)
Articles:
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American College of Rheumatology
National Library of Medicine Medline Plus (reputable place to look up health related questions)
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Dr James Kustow, a 2-part video part 1 & part 2
This article is also interesting : Joint Hypermobility Links Neurodivergence to Dysautonomia
And the article is discussed in the podcast Bendy Bodies episode 47 with Dr Jessica Eccles
More on dysautonomia? Bendy Bodies episodes 21 & 22 with Dr Svetlana Blitshteyn are packed with interesting information!
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